McCain jumps into autism controversy, rejects science and evidence

I can appreciate that this is an emotional issue for some people, but if we limit ourselves to evidence and science, it looks like we have yet another issue in which John McCain doesn’t know what he’s talking about.

At a town hall meeting Friday in Texas, Sen. John McCain, R-Ariz., declared that “there’s strong evidence” that thimerosal, a mercury-based preservative that was once in many childhood vaccines, is responsible for the increased diagnoses of autism in the U.S. — a position in stark contrast with the view of the medical establishment.

McCain was responding to a question from the mother of a boy with autism, who asked about a recent story that the U.S. Court of Federal Claims and the National Vaccine Injury Compensation Program had issued a judgment in favor of an unnamed child whose family claimed regressive encephalopathy and symptoms of autism were caused by thimerosal.

“We’ve been waiting for years for kind of a responsible answer to this question, and are hoping that you can help us out there,” the woman said.

McCain said, per ABC News’ Bret Hovell, that “It’s indisputable that (autism) is on the rise amongst children, the question is what’s causing it. And we go back and forth and there’s strong evidence that indicates that it’s got to do with a preservative in vaccines.”

McCain said there’s “divided scientific opinion” on the matter, with “many on the other side that are credible scientists that are saying that’s not the cause of it.”

As is too often the case with the senator, his comments were ill-informed and misleading. He argued that there’s “strong evidence” linking thimerosal to autism rates. That’s false. He also insisted that there’s “divided scientific opinion” on the issue. At best, that’s misleading.

ABC News’ Jake Tapper, who’s making a comeback after a rough couple of weeks, ran a helpful report that cut through the spin and presented people with the evidence.

The established medical community is not as divided as McCain made it sound, however. Overwhelmingly the “credible scientists,” at least as the government and the medical establishment so ordain them, side against McCain’s view.

Moreover, those scientists and organizations fear that powerful people lending credence to the thimerosal theory could dissuade parents from getting their children immunized — which in their view would lead to a very real health crisis.

The Centers for Disease Control says “There is no convincing scientific evidence of harm caused by the low doses of thimerosal in vaccines, except for minor reactions like redness and swelling at the injection site.”

The American Academy of Pediatrics says “No scientific data link thimerosal used as a preservative in vaccines with any pediatric neurologic disorder, including autism.”

The Food and Drug Administration conducted a review in 1999 — the year thimerosal was ordered to be removed from most vaccines — and said that it “found no evidence of harm from the use of thimerosal as a vaccine preservative, other than local hypersensitivity reactions.”

The Institute of Medicine’s Immunization Safety Review Committee concluded “that the body of epidemiological evidence favors rejection of a causal relationship between thimerosal-containing vaccines and autism.”

And, on the other side, we have the presumptive Republican presidential nominee, who believes there’s “strong evidence” that contradicts all of the available scientific research. Worse, McCain suggested that thimerosal is still in vaccines, though that does not appear to be the case.

This is not just a problem of another Republican leader who has little use for evidence and reason. As Kevin Drum noted, McCain’s confusion, when shared with large audiences, can have public-health consequences.

The odds of thimerosal being responsible for autism are now slim and none, and perpetuating this myth does real damage — both to the cause of autism research and to the millions of parents who hear this and decide to keep their children from receiving the normal complement of childhood vaccines.

So what happened here? Why did McCain perpetuate this rubbish without even a smidgen of doubt in his voice? Was he pandering to some constituency or other? Was he just making shit up because he didn’t really know anything about the subject? Was he misinformed by own staff about this? Unfortunately, my guess is that the correct answer here is “making shit up,” a quality that McCain has shown an unfortunate weakness for in the past.

I know reporters love the guy, but the reality is that John McCain tends to say whatever thought pops into his head, without much regard for whether it’s true or makes sense. As Mark Kleiman added, “The best one can say for McCain’s behavior is that it marks him as a fool, willing to flap his jaw about important topics based on ignorance.”

It’s not exactly an attractive quality in a presidential candidate.

One of the major proponents of the thimerosal-autism connection, a few years back, was Don Imus. How comforting to see that Sen. McCain is getting his scientific advice from the I-Man.

  • McCain is as reckless now as he was during his time in the Navy. His dad and his granddad were four-star admirals, so he was never held to the same standards as everybody else, naval or behavioral. He demolished his planes, cheated on his wife, turned his DC naval office into an R&R bar for the politicos and has pretty much been allowed to float.

    If this thimerosal flap fits the previous pattern of his life (“What, me worry?”) that’s one thing. If there’s drug company money involved (given or withheld) that’s another. We’ll never know until we finally get some reporters to check things.

  • McCain also thought there was “strong evidence” for WMD in Iraq, and a Saddam-al Qaeda connection. Go figure.

    Audrey Grayson, the health and science correspondent at ABC News, has been getting flamed for the last week by anti-vaccine extremists. She is well aware of McCain’s new found love for the Flat Earthers at AgeOfAutism.com, and other dark corners of the internet.

  • The thimerosal-autism connection meme is very widespread. I’m not surprised that anyone shooting from the hip would get it wrong. I hope this flap causes more of the truth to get out and down to the people who really need to know. Sen. McCain should quickly fire off a retraction and make a statement about the truth. It’s not a crime to be taken in folklore. It should be a crime to allow bogus folklore to go on because you don’t want to admit being wrong.

  • Anyone who is interested in reading more about the flawed attitudes of the anti-vaccination hordes should go read Respectful Insolence, a science blog by a surgeon/scientist who spends a lot of time debunking their nonsense.

  • This is supposed to be some kind of “campaign issue”? Puh-leeze. Even if the “evidence” and “science” is against what McCain is saying, it doesn’t negate this:

    McCain was responding to a question from the mother of a boy with autism, who asked about a recent story that the U.S. Court of Federal Claims and the National Vaccine Injury Compensation Program had issued a judgment in favor of an unnamed child whose family claimed regressive encephalopathy and symptoms of autism were caused by thimerosal.

    Regardless of the “evidence” and “science”, there was a recent legal ruling stating the opposite. How did this legal ruling come to pass? I don’t know; I don’t have the details of the case. But one would think the ruling was based on testimony that came from…you know…scientists, scientists who do say that thimerosal could lead to autism. Which then this statement, “The established medical community is not as divided as McCain made it sound, however.“, not entirely true in either a legal or political sense. It also seems that whomever the judge was that issued this ruling, actually sided with the family over the drug companies that used thimerosal in the past for their vaccines. Which I thought, to a “liberal”, was a good thing.

    This is just more nothing to knock McCain with, and any anal-retentive, detailed-oriented individual trying to make this a campaign issue is really picking at nits that, in the end, are pointless.

  • Wow, I disagree w/ CB on something. Even more shocking is that I actually agree w/ McCain on something.

    I have young children, I’ve had to do the homework on mercury based vaccine preservatives – and real investigation includes more than just listening to political soundbites. The stuff is bad news, and McCain is at odds w/ his party w/ this position.

    “Senate Majority Leader Bill Frist, who has received $873,000 in contributions from the pharmaceutical industry, has been working to immunize vaccine makers from liability in 4,200 lawsuits that have been filed by the parents of injured children. On five separate occasions, Frist has tried to seal all of the government’s vaccine-related documents — including the Simpsonwood transcripts — and shield Eli Lilly, the developer of thimerosal, from subpoenas. In 2002, the day after Frist quietly slipped a rider known as the “Eli Lilly Protection Act” into a homeland security bill, the company contributed $10,000 to his campaign and bought 5,000 copies of his book on bioterrorism. The measure was repealed by Congress in 2003 — but earlier this year, Frist slipped another provision into an anti-terrorism bill that would deny compensation to children suffering from vaccine-related brain disorders.”

    I won’t go into any more of the vast amounts of real data that support the conclusion that thimerasol is bad news. Here’s a link, though, that y’all might be able to stomach. It’s by RFK Jr. written in Rolling Stone from June 2005:
    http://www.rollingstone.com/politics/story/7395411/deadly_immunity/

  • Also, the stuff is banned in all of Europe, at the time I was doing research, only Iowa and California outlawed it. But it was on the chopping block in at least 26 other states at the time, too. At the time, too, it was already made illegal in over the counter non-prescip. drugs. So why is it safe for to give 22+ shots of this stuff to a developing human over a course of their first 6 years. It’s not.

  • McCain will find himself in bed with a lot of strange characters if he continues on this rant. Dr. David Ayoub, MD, is a Springfield, IL, radiologist who says the World Health Organization uses vaccines to secretly sterilize women in third world countries, as part of a plot to depopulate the earth. Bill Gates and the Rockefeller Foundation are in on the plot, you see. Here’s the video of Ayoub speaking to a room full of gasping dunderheads:

    http://tinyurl.com/2jl6xj

    Ayoub seems like a fringe character to those of us who paid attention in school, but to the anti-vax extremists, he is a demi-God.

    There’s no shortage of barking loons in the anti-vaccine movement. Dr. Mark Geier, MD, a Maryland doctor, uses a powerful chemical castration drug to “cure” children with autism. He regularly pops up as a witness in vaccine lawsuits, and his testimony is just as regularly disallowed by skeptical judges.

    Boyd Haley, PhD, is a chemistry professor from Kentucky who recently told a judge that the CDC and FDA should be held criminally liable for poisoning children with vaccines. Not surprisingly, the judge soon after disallowed Haley’s “expert” testimony, and the case against Wyeth was dropped following a motion for summary judgment.

    But the most amusing anti-vaccine wantwit of them all is Dr. Jeffrey Bradstreet, MD, Christian healer. His Good News Clinic in Melbourne, FL, is the Lourdes Shrine of the autism quackery industry, attracting thousands of desperate, vulnerable parents for such ineffective treatments as chelation and hyperbaric oxygen therapy. Bradstreet abruptly left Good News a few months ago, under a cloud of suspicion that he had been hitting on the moms. He’s now left his family (including his third wife), and fled to another quack clinic in Arizona.

    How desperate does McCain have to be to pander to this crowd?

  • There’s more scientific conrtoversy about thimerisol than about evolution & global warming. Why is Mccain speaking with such certainty about this? Is he reaching out to the fringe, or just shooting from the (broken) hip?

  • The Mrs and I did a TON of reading and research on this after The Boy was born. As noted, there is stunningly little evidence that vaccines cause autism. Yet millions of parents have decided to play Russian roulette with their kids’ health anyway based on barely any evidence. We decided to go with science on this one.

    Thimerosal was around for decades before the sudden increase in autism rates. Were those kids just magically immune from the autism link? Why weren’t there autistic kids running around in the 60s and 70s if it was such a dangerous thing? If the link is real, it would have cropped up long, long ago.

    There’s also the fact that one cannot really diagnose autism until around age three or so — which happens to coincide with a round of vaccines. Thus, many parents started to make a connection that, quite frankly, was tenuous at best.

    While this whole thing with McCain may be a tempest in a teapot to some, it’s actually quiet demonstrative of two wider problems:

    1. McCain’s tendency to speak on things he knows very little about, which seems to be pretty widespread among the right. Just look at our resident wingnut, who admits he knows nothing about a court case and then goes on to discuss as if he does. Some call this “straight talk.” I call it “clueless claptrap.”

    2. The right’s continued ignorance (willing or otherwise) of basic scientific facts. While McCain isn’t as bad as others in his party in this regard, it’s still an affliction from which he suffers. Granted, one should be skeptical about science, as scientists themselves are (there’s a reason legit scientists have their studies peer-reviewed). But these folks are openly hostile to science. I guess that’s what happens when one puts more stock in a 2,0000-year-old book than, you know, demonstrable facts.

  • SteveIL:

    That particular case might well be an instance of vaccine-related injury. However, (1) it has nothing to do with thimerosal, (2) the girl has a rare genetic disorder than made her extraordinarily sensitive to infective agents, and (3) her autism-like symptoms are due to brain damage caused by her disorder and aggravated (the compensation board determined) by the vaccine — thus the particulars of this case don’t seem relevant to autism cases in general.

  • SteveIL (aka heavy metal conservative), you don’t know what you’re talking about. The U.S. Court of Federal Claims and the National Vaccine Injury Compensation Program did not “issue a judgment in favor of an unnamed child whose family claimed regressive encephalopathy and symptoms of autism were caused by thimerosal.” The rules of evidence are significantly lower in an NVIC hearing than in, say, the criminal trials that Republicans know so well.

  • So why is it safe for to give 22+ shots of this stuff to a developing human over a course of their first 6 years. It’s not.

    You’re right! That’s why a shocking 94% of all children have autism. :O

    I have young children, too, and I agree with Mark D, you’re playing a deadly game of roulette with your kids health based on statistical insignificance. Vaccines save lives; get your kids vaccinated and spay and neuter your pets.

  • So why is it safe for to give 22+ shots of this stuff to a developing human over a course of their first 6 years. It’s not.

    What stuff are you talking about? Thimerosal has been gone from scheduled childhood vaccines since 2002. Or are you talking about antigens? Have you ever had children? Kids are floating in a sea of germs every day. They’re walking petri dishes.

  • I am in 100% agreement with Hericlitus (at 7) on this. The drug companies are making the science on this issue, and McCain is strangely more right than you give him credit for. There’s a lot to pick on McCain about, but I think this is one issue to cut him slack on. I have represented families with autistic children against the drug companies on this issue, and I can tell you I will go to my grave believing Big Pharma got away with poisoning our kids with mercury thousands of times over. The hurdles put up by the federal government (you can’t sue in court until after you’ve exhausted your non-existent remedies in federal vaccine “court”, which takes years and thousands of dollars, money these clients don’t have to spare after spending on med bills and care for their special children) and then you have to deal with immunities dealt out as favors by the likes of Frist and Tommy Thompson and the like. Eli Lilly invented thimerosal, and Bush 41 sat on their board in the 70’s. Mitch Daniels was Sec. of Treasury in the early years of shrub’s first term, then Gov of Indiana, and his background was as Senior VP for Corporate Strategy and Policy for Eli Lilly from 19993-2001. I could go on and on, but suffice to say I have been involved in high stakes litigation for 20 years and have never seen a group of defendants as wired with protection as this bunch.

    I am really scratching my head as to why McCain takes the side of the underdogs on this one. That’s the real story to me, not that he is misinformed.

  • Heraclitus said:

    Also, the stuff is banned in all of Europe, at the time I was doing research, only Iowa and California outlawed it. But it was on the chopping block in at least 26 other states at the time, too. At the time, too, it was already made illegal in over the counter non-prescip. drugs.

    I’m not anti-vaccine, nor do I have kids. But I did some reading on this with my sister when my niece was born. (My niece has received all her vaccinations to date, BTW.)

    I think Heraclitus is right — the US medical establishment is trying to bullshit the general public on this one. It’s a cost and profit issue for the healthcare industry; they don’t was to give up the longer shelf life that thimerasol gives them.

    The EU is anti-rGBH and anti-GM crops, too — in the long run, I think they’ll be proven correct about all three issues.

  • Thimerosal is still in almost all flu vaccines and some others as well. It takes years to diagnose autism, so watch California and their studies on thins issue. They are the only ones doing large enough studies with enough funding to tell us what’s really going on.

  • SteveIL said: This is supposed to be some kind of “campaign issue”? Puh-leeze. Even if the “evidence” and “science” is against what McCain is saying, it doesn’t negate this:

    McCain was responding to a question from the mother of a boy with autism, who asked about a recent story that the U.S. Court of Federal Claims and the National Vaccine Injury Compensation Program had issued a judgment in favor of an unnamed child whose family claimed regressive encephalopathy and symptoms of autism were caused by thimerosal.

    SteveIL: You are shooting from the hip. Clearly, you have not followed this case. Here is a wonderful analysis of the medicine behind the decision:

    http://www.theness.com/neurologicablog/index.php?p=203

    SteveIL: Regardless of the “evidence” and “science”, there was a recent legal ruling stating the opposite. How did this legal ruling come to pass? I don’t know; I don’t have the details of the case.

    It is always a good idea to get them before shooting from the hip.

    SteveIL: This is just more nothing to knock McCain with, and any anal-retentive, detailed-oriented individual trying to make this a campaign issue is really picking at nits that, in the end, are pointless.

    Not at all. The problem that McCain’s comment raises is that he seems to be weak on science. Clearly, he was willing to make a pronouncement that could have wide ranging public health consequences, but did not bother to check his facts before doing so.

    We have had this shoddy (I am being kind) type of “thinking” in the White House for the past eight years. Science has taken serious hits when it was necessary to do so for political reasons. Time for this is over. The US is fast becoming a second rate science/technology country.

    Note for Jake: Imus is still spewing the anti-vaccination crap that he always has. His wife, Diedre is his prime mouthpiece.

  • Sorry, Mitch Daniels was Director of the Office of Management and Budget from 2001-03, not Treasury.

  • I think McCain’s problem is that he’s a people-pleaser who feels required to tell people what they want to hear, even if it contradicts what he just told someone else. And I’m convinced that this trait will bite him in the butt bigtime and the more he talks, the less people will like him; media included. It’s not that he’s trying to BS people, he just can’t help it. That’s not to say that he’ll do this for everyone, but there are certain people who feel compelled to please the people who like them and I strongly suspect McCain is one of those people. In this case, I doubt McCain’s big into the issue of vaccines and autism; he just wanted to tell that lady what she wanted to hear.

    McCain’s not a liar; he just wants to be loved. Is that so wrong?

  • Every time I run across one of these Thimerosol Twits, I put them in the same catergory with people who believe in “pyramid power,” who think that astrology is a science, who believe in creationism. I don’t waste further time on such morons.

    I am “on the spectrum” of autism, Asperger’s being also known as “high-functioning autism.” My late brother was further along the spectrum. I’ve spent more than a few minutes studying what this is and keeping up with the latest literature, since it’s not something there’s a “cure” for other than coming up with new “coping strategies.”

    Wherever autism “comes from” it isn’t something one “catches.” It’s genetic. Every one of the Thimerosol Twits – were they to look back over a couple of generations in their family – would find at least one person (likekly a male) whose behavior was at the time unexplained (due to lack of knowledge) but could be described in terms that would describe someone “on the spectrum.” They would do best to look through the male line, since it appears to be passed on from fathers to sons (my father was definitely an “Aspie” looking back at him).

    Thimerosol is as much the cause of autism as a woman getting pregnant from rubbing her vagina against semen on a public toilet.

    No surprise though that the morons wouldn’t want to admit that the cause of their child’s autism can be seen by staring in the bathroom mirror, or that they’d be dumb enough to think John McCain had anything to say about anything.

  • Vaccines save lives; get your kids vaccinated and spay and neuter your pets.

    Hell … in some cases, it’s a good idea to get your pets vaccinated and spay and neuter your kids.

    😉

    Just to chime in on ArkyTex and bee thousand’s points: I don’t disagree that big pharma has a lot at stake. Trust me — I am NO fan of them, insurance companies, or even most doctors for that matter (two back surgeries over the course of five years, with another to come, is a big reason … I could share stories that would make everyone’s heads explode).

    But, again, not just the research, but sheer logic isn’t against them this time, IMHO. Kids got vaccines like this for years, yet it suddenly became an issue? And thimerosol is no longer in kid’s vaccines — so how does one explain those who STILL are making the connection, even though the product allegedly to blame is no longer present?

    A wider definition of autism seems to be about 95%+ to blame on this, with other factors needing to be investigated.

    I just don’t get how it can be an ingredient no longer used.

    **shrugs shoulders, thanks the gods every day his kid is “normal”**

  • As to the “fact” that more people seem to have Autism than in earlier years, that is bullshit, plain and simple.

    What has happened is that more is known about Autism now, so more people can be diagnosed.

    In my own case, Asperger’s Syndrome was first described in 1944, though there was nothing really done with that until around 1994, so that all of the knowledge and treatment has been developed over the past 15 years. For me, for the first 50 years of my life, I was just this “wierd kid” who became this “wierd boy” who became this “wierd man” who had problems with socialization and reading with social situtations successfully. In my own case, all I’ve really learned is that I wasn’t crazy all those years (as I sometimes thought I was) and that the few coping strategies I came up with on my own (like find success as a writer and limit my interpersonal interactions) were useful. As I think about it now, I am actually glad they didn’t know what it was back in the 1950s, since the “solution” would likely have been to lobotomize me (as I am sure happened to any number of people “on the spectrum” who were just diagnosed as “being problems” back then).

  • OK, wading into this a little late…

    First, thimerosal has been used for decades, but has NOT been administered at the levels we did see commonly given to kids before the controversy exploded. Individual vaccinations did not contain harmful amounts of mercury, but the cumulative dosage was WAY over the recommended levels of exposure. Second, as was noted above, the dipshits who were giving kids these massive overdoses of mercury finally realized what they were doing and immediately began to a) phase out thimerosal and b) indemnify themselves. What is interesting is that they decided to phase it out instead of saying “holy shit, stop giving mercury overdoses to kids NOW”. This was either to save money, or because they didn’t want to see the data all of a sudden (three years later) show that the vaccine preservative was actually causing problems.

    Apparently there is a wide variation in the ability of children to clear mercury from their systems, and unsurprisingly the kids who can’t expel mercury as easily suffer from exposure that “regular” kids don’t seem to be affected by. Due to the way different people react to it, the exact problems this level of mercury exposure causes are still unclear, but what is indisputable is that if parents followed the official vaccination guidelines, they would have exposed their children to levels of mercury hundreds of times beyond the EPA’s “safe” levels. There are other vaccine preservatives that are in use now, thanks to the people like me who complained loudly once we became aware of the mercury issue. And although it is claimed that they were phased out earlier, as recently as two years ago they were still injecting kids with thimerosal-preserved vaccines, but you could get one without thimerosal if you asked for it. Obviously there were/are alternatives to mercury.

    But WTF, do we want to inject kids with a known neurotoxin? Are we skeptical that an epidemic of autism might be connected to mercury overexposure? All of this becomes debatable, but the coverup they’ve tried to commit is not a mystery and you will see that eventually as the story unfolds. As mentioned above, I’ll believe the scientists who look into this and aren’t involved in a CYA operation.

    The CYA that occurred is going to lead to some bogus lawsuits and some legit ones, but we shouldn’t be fooled by people who say there’s no connection between vaccines and autism, because the jury is still out on that.

    …At the time of our review, vaccines containing thimerosal as a preservative could expose infants to cumulative mercury at levels that exceed EPA recommendations during the first 6 months of life. The clinical significance of this conclusion is not currently known…

    http://en.wikipedia.org/wiki/Thiomersal_controversy

  • Not sure McCain shouldn’t get a minor pass on this one.
    The documentation behind this issue has been rife with hedges and qualifiers and has never been summed up as well as in this article, and I looked real hard for it.
    Almost no one is adequately informed and still fewer are familiar with the obligatory language scientists use to specify degrees of certainty. The same language allows creationists to point to doubt about evolution. Well, yes. There’s doubt and then there’s doubt. Mercury dosages have been squishy due to the combination vaccines, separate vaccines and newer vaccines like chicken pox, some of which had mercury and some that didn’t and data describing which patients got which was difficult to understand.

    Couple that with FDA’s paranoia about parents being less likely to immunize over tiny risks and their hesitancy to share any data that IS negative produces the very paranoia they hope to avoid. Add in the medical establishment’s unfortunate conflicts of interest involving pharma sponsored incentives.dovetailing with Clinton/Bush era laissez faire government oversight tendencies.

    This mercury preservative allowed longer shelf life for vaccines which helped supply issues at pharma companies. Incentives to fudge data were obvious and who can deny that pharm is NOT honest about their medicines’ negative side effects. Often the data honest people use are based on dishonest parties’ studies. The source of data is frequently poorly documented. The situation may be more clear than mud, but it isn’t spring water either. If some folks can be unsure of global warming or even fluoridation, is it any surprise that some people are skeptical of heavy metals being safe in medicine?

  • No, RacerX, the jury is not out on this — unless you think the jury is also out on creationism, astrology, or homeopathy. I’m not going to repeat gg’s cite (#5 above) but simply suggest you follow it, or check out any bi-weekly edition of the Skeptic’s Circle blog carnival for a full discussion of the subject. (‘Orac,’ who runs RESPECTFUL INSOLENCE is, btw, a life-long ‘moderate Republican’ who is finding it difficult to support any candidate in the race. He’s also an internet friend of mine — if I had kept my own blog up I’d call him my ‘blogfather’ — who I am writing suggesting he write an op-ed piece on the subject.)

    I’m not going to give a full discussion here, because I’m not qualified, and because it is a lot more enjoyable to read Orac than to read me. But ever since this connection was suggested, it has been studied, repeatedly, and every serious study has disproven it.

  • Attack on Mothers, Robert F. Kennedy, Jr., The Huffington Post, June 19, 2007

    The poisonous public attacks on Katie Wright this week–for revealing that her autistic son Christian (grandson of NBC Chair Bob Wright), has recovered significant function after chelation treatments to remove mercury — surprised many observers unfamiliar with the acrimonious debate over the mercury-based vaccine preservative Thimerosal. But the patronizing attacks on the mothers of autistic children who have organized to oppose this brain-killing poison is one of the most persistent tactics employed by those defending Thimerosal against the barrage of scientific evidence linking it to the epidemic of pediatric neurological disorders, including autism. Mothers of autistics are routinely dismissed as irrational, hysterical, or as a newspaper editor told me last week, “desperate to find the reason for their children’s illnesses,” and therefore, overwrought and disconnected.

    Email
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    Buzz up!on Yahoo!But my experience with these women is inconsistent with those patronizing assessments. Over the past two years I’ve met or communicated with several hundred of these women. Instead of a desperate mob of irrational hysterics, I’ve found the anti-Thimerosal activists for the most part to be calm, grounded and extraordinarily patient. As a group, they are highly educated. Many of them are doctors, nurses, schoolteachers, pharmacists, psychologists, Ph.D.s and other professionals. Many of them approached the link skeptically and only through dispassionate and diligent investigation became convinced that Thimerosal-laced vaccines destroyed their children’s brains. As a group they have sat through hundreds of meetings and scientific conferences, and studied research papers and medical tests. They have networked with each other at meetings and on the Web. Along the way they have stoically endured the abuse routinely heaped upon them by the vaccine industry and public health authorities and casual dismissal by reporters and editors too lazy to do their jobs.

    Many of these women tell a story virtually identical to Katie Wright’s — I have now heard or seen this grim chronology recounted hundreds of times in conversations, e-mails and letters from mothers: At 2-1/2 years old, Christian Wright exceeded all milestones. He had 1,000 words, was toilet-trained, and enjoyed excellent social relations with his brother and others. Then his pediatrician gave him Thimerosal-laced vaccines. He cried all night, developed a fever and, over the coming months, this smart, healthy child disappeared. Christian lost the ability to speak, to interact with family members, to make eye contact or to point a finger. He is no longer toilet trained. He engaged in stereotypical behavior–screaming, head-banging, biting and uncontrolled aggression, and suffers continuously the agonizing pain of gastrointestinal inflammation.

    After hearing that story a couple dozen times, a rational person might do some more investigation. That’s when one encounters the overwhelming science — hundreds of research studies from dozens of countries showing the undeniable connection between mercury and Thimerosal and a wide range of neurological illnesses. In response to the overwhelming science, CDC and the pharmaceutical industry ginned up four European studies designed to disguise the link between autism and Thimerosal. Their purpose was to provide plausible deniability for the consequences of their awful decision to allow brain-killing mercury to be injected into our youngest children. Those deliberately deceptive and fatally flawed studies were authored by vaccine industry consultants and paid for by Thimerosal producers and published largely in compromised journals that neglected to disclose the myriad conflicts of their authors in violation of standard peer-review ethics. As I’ve shown elsewhere [see http://www.robertfkennedyjr.com], these studies were borderline fraud, using statistical deceptions to mislead the public and regulatory community.

    The CDC and IOM base their defense of Thimerosal on these flimsy studies, their own formidable reputations, and their faith that journalists won’t take the time to critically read the science. The bureaucrats are simultaneously using their influence, energies and clout to derail, defund and suppress any scientific study that may verify the link between Thimerosal and brain disorders. (These would include epidemiological studies comparing the records of vaccinated children with those of unvaccinated populations like the Amish or home-schooled kids who appear to enjoy dramatically reduced levels of autism and other neurological disorders.) The federal agencies have refused to release the massive public health information accumulated in their Vaccine Safety Database (VSD) apparently to keep independent scientists from reviewing evidence that could prove the link. They are also muzzling or blackballing scientists who want to conduct such studies.

    Ironically, it is the same voices that once blamed autism on “bad parenting,” and “uninvolved” moms that are now faulting these mothers for being too involved.

    Due to this campaign of obfuscation and public deception, Thimerosal-based vaccines continue to sicken millions of children around the world and potential treatments — like the chelation that benefited Christian Wright — are kept out of the hands of the mainstream doctors now treating autistic kids with less effective tools. Like thousands of other mothers of autistic children, Katie Wright knows what sickened her child. Her efforts to spare other families this catastrophe, deployed with a cool head and calm demeanor, are truly heroic. Maybe it’s time we all started listening. Maybe it’s time to start respecting and honoring the maternal instincts and hard work of Katie and her fellow mothers by aggressively funding the studies that might verify or dispute them.

  • As a parent of a severely autistic son, and a long time advocate and activist for the disable, I can say that I understand the emotions that drive this vaccine theories (thimerosal, MMR, etc.).

    There is little doubt that the scientific evidence of any such link is incredibly thin. At a recent presentation I asked the head of the UC Davis MIND Institute (a parent founded research foundation) why he had used ‘vaccination’ as a hypothetical four times in his speech. I asked if he could provide me with a single piece of clinical research or study that would support such a link. He then conceded that no, he could not think of a single study he considered compelling. He even went on to mention that after 3 particular studies in the last few years, that many of the professionals at the institute were wondering if the theories weren’t “dead”. But, he added, mercury is nasty stuff and vaccines and injected…

    So I asked him about Omega 3, which he has clearly been dismissive of in his presentation. Not just that there was no evidence that it was anything but a placebo, but raising a point that fish oils now frequently have high mercury levels. So I asked, how did all that mercury get in the fish? That is, when did we start vaccinating them?

    The Doctor got my point and told the audience what they needed to hear. We have to remember that the thimerasol theory is really a string of unproven theories, all dependant on each other. We don’t know for sure if thimerasol really behaves like mercury in the human body, we don’t know if neurological developmental disorders like autism are frequently caused by toxins, let alone mercury, in the human body. Even if we prove one, we can’t jump to the conclussion that all are true, and he gave the example, even if we could prove, which we have not, that mercury was somehow involved, that does not mean that it is from vaccines given post birth, neurological development could be damaged by toxins from some other source, early in neonatal development.

    Something research has shown us, including MIND institute research, is that neurological differences can be detected among many autistic children much earlier than previously thought. This means that the absense of overt signs prior to diagnosis does not nec. give us a clear indication of real ‘onset’.

    I am not saying that a vaccine link is impossible, just seemingly unlikely based on the evidence we have. But even in front of a large group that overwhelmingly knew me – that is, many of the people in the room had seen me help their children, sit with them at their IEPs, fund programs, write letters, lobby etc. did not take questioning this scientific theory at all well. So it does not surprise me to see CB take a ton of heat. One of the problems with autism is that we know so little, blame cannot really be assigned. When all those emotions, rage, guilt, dispair, etc. get attached to a psuedo certainty, questioning the underpinning of the belief becomes a very personal and emotional matter.

  • I get tired of these posts. You should all know by now that the people who think it’s the vaccines are parents with autistic children who observed changes immediately after taking a vaccine. The people against these parents are Big Pharma. Why are you so ready to believe Big Pharma? Studies have shown that communities that don’t take the vaccines — the Pennsylvania Dutch — have about 0% autism. Is that really some kind of coincidence? The American Medical Association lobbied to not allow the funding of a major study that would really find out once and for all whether thimerasol was implicated. Does that really suggest that the medical community is unbiased in this matter? Which would leave them liable for lawsuits? The studies that claim to show that thimerasol can’t be the culprit that I have seen have always had some flaws. One of the most recent claimed there could be no connection because rates of autism haven’t gone down since they began phasing out using thimerasol in the shots. But in that same period, doctors have come to recommend that all pregnant women and young children take flu shots. From what I understand, about 80% of these shots are preserved with thimerasol. There has been no definitive answer, Steve, and I wish you weren’t so dismissive without having looked seriously at the claims of parents. I thought part of being a Democrat was looking out for the individual fighting the system…

  • Kevin Drum has something today on how the courts are getting set to make pharmaceuticals immune from prosecution by individuals injured by their products. Isn’t that a little more important?

  • Catherine, did you even read my post? Yes, the MMR link was theorized because of the timing. But we have seen studies involving a million children tracked over decades. Likewise, we now have studies suggesting that overt symptoms are not the first measurable signs of the disorder.

    You are claiming that autism is non existant among a segment of the population. But aside from an article written by Dan Olmsted, which was a non clinical study, we don’t really have any real evidence that this is true. Even if it were, it is another case of trying to take gigantic leaps from desired theory to available evidence.

    The Pennsylvania Dutch is a remarkable small gene pool, what about genetics? What about all the other dramatic differences in lifestyle? Do they sit by their idling SUVs, inhaling fermo type fumes, absorbing insidious positions like MTBE, with their cell phone’s glued to their heads?

    Also, what about the reverse? Why selective believe is statistics? If thimerasol is a culprit, wouldn’t there be a connection to exposure? But rates of autisim in the US seemingly exploded almost a decade after maximum average exposure. Likewise, two academic studies have failed to find a correlation between incidence here in the US and countries which still have high exposures. And, I think most tellingly, we can’t find any evidence that autism incidence is higher for groups with above average mercury exposure.

    What I believe in is scientific study. I do not dismiss parental experiences, but annecdotes are not science. We see the same thing in ‘cures’ that we see in ’causes’. Some children simply get better. Sometimes symptoms diminish with development, hormonal changes, whatever. But since desperate parents understandably try everything, every annecdote leads to wide spread belief in a new miracle cure. When we actually get around to studying things like DMG, secretin, etc., in double blind studies, we generally find diddle. Even with regards to interventions that do have some clinical support, we have to be careful. For example, ABA does appear, statistically, to have some measurable long term benefits. But when we study it independantly, the statistical benefit is a lot slimmer than its loudest proponents claim. Looking back, we can see why, Lovaas cherry picked. Much the way that private schools can have an academic advantage because they can filter out bad and troublesome students, Lovaas picked high probable outcome patients for his landmark study. That is, he stacked both his treatment and control groups.

    This is not to diminish what the man has accomplished. It just points to why we approach things a certain way in science. This is why we use things like double blind studies, random selection, and peer review.

  • The people against these parents are Big Pharma.

    Thanks for letting me know what my motivations are, as well as what I think about the parents of autistic children. What would I have ever done without you?

    /snark

  • idlemind (#13) and Autism News Beat (#14), I took my information straight from the first link in the post. It said what it said, that a judge ruled that autism in a case of the child in the article was caused by thimerosal. That is what the person in the article said. Whether that was true, I have no way of knowing. I did say that I didn’t know the case, nor do I intend to find it. I don’t really care how these kinds of rulings come out, how reliable they are, but a judge did issue a ruling, at least that is what is said. Take it for what it is.

    TheProbe (#20) said, “Not at all. The problem that McCain’s comment raises is that he seems to be weak on science. Clearly, he was willing to make a pronouncement that could have wide ranging public health consequences, but did not bother to check his facts before doing so.” So he’s weak on science. Big deal. He’s a politician. I am an expert on some facets of computer programming. But if I ask McCain (or Obama or Clinton) related to something detailed in this that is affecting my life, do I think I’d get a detailed answer? No. If anything, he gave the usual political “non-answer” answer, as he should in this matter. But it’s nothing to beat him up on.

    We have had this shoddy (I am being kind) type of “thinking” in the White House for the past eight years. Science has taken serious hits when it was necessary to do so for political reasons. Time for this is over. The US is fast becoming a second rate science/technology country. Sorry, but there is a war on. And not against global warming or whatever the buzzphrase of the moment is.

    As far as McCain, I’m sure he doesn’t have individual policies on multiple sclerosis or gonorrhea, both diseases seemingly on the increase. I would also imagine he’d give the same answer. I’ll bet that whole exchange took all of 20 seconds, and look at the thousands or words written about it. No offense, but people need to get a grip. We’re electing a President, not “Dr. Mom”.

    Regarding shoddy scientific thinking at the White House, yeah well, there’s enough blame to go around. Congress sets up these agencies, and they’ve given the Executive Branch all the authority to run them as they want. If Congress wants the agencies to have less interference on some of this, then it is up to Congress to fix it. That’s how things are done here. Either that or do what I would want, have the government out of it altogether.

  • Thimerosal Twits? Oh, like Cigarette C@$%$? Or Asbestos A$$&$? Or Vioxx Vermin? Or Thalydomide Thlackers? Fen-Phen Phanatics? Benzene Bozos? Silicosis Sillies? Yes, like those I believe. Let’s take those warnings off cigarettes and pass em out to the kids, and stuff asbestos back in our schools and give preganant mommies some thalydomide for morning sickness while she loses those extra pounds by taking handfuls of fen-phen.

  • ArkyTex, I’m not sure I see a connection. With one seeming exception, you are listing problems that actually show up when we do scientific studies.

    The dangers of silicon breast implants, well, again, I have to stick with the science. For better or worse, humans sometimes develop irrational fears of stupid things. You may recall the flurry of terror about airbags, with people paying mechanics to disable them. We even had congressional hearings. But if one bothers to look, one will find that about 3-4 times as many children are killed by latex party balloons each *year*, than were alledgedly injured/killed by airbags over a 7 year period. I know that my kids have had a heck of a lot more exposure to cars than party balloons, so the risk per exposure is probably fantastically higher.

    But we don’t have congressional hearings on party balloons, or refer to them as ‘festive orbs of death’. And, frankly, I don’t loose a moments sleep about it.

    PDD disabilities are becoming a very serious public health problem and I strongly support research into all possible avenues (this sentiment is shared by our whole family, my parents left much of their estate to autism research, and my inlaws recently made a large gift to my mother-in-law’s alma matter for the same purpose). But it does not, in my opinion, do any good if we just gnash our teeth and get angry when science does not tell us what we do not want to hear.

  • Then Fitz. I guess my point might be that others were ridiculed as alarmists yet proved to be right. And I was talking about silicosis, a deadly lung disease that strikes sandblasters and hard rock miners, not breast implants.
    I am fine with “science” telling us the truth, I just know the lengths politicians and drug companies have gone to in this area to distort the literature.

  • Obama is a Muslim. Hillary is a lesbian. The Amish don’t have autism.

    Three ignorant statements, each born of fear and loathing. C’mon guys, we’re better than this. No need to resort to urban myths when the facts are out there, plain for everyone to see.

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